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  #1 (permalink)  
Old 04-23-2009, 04:59 PM
Eytbol8 Eytbol8 is offline
Junior Member
 
Join Date: Mar 2009
Posts: 34
Unhappy 10 day pregnancy test negative, weeks later pregnant, now Ectopic

I've posted pieces of my situation, but wanted to post the whole thing here in hope for some support.

I am 35-years old and have had my first IVF cycle in Thousand Oaks, CA in late Feb/early March. All my pre-test came back great and I appear to have no obvious problems, ovaries are fine, tubes and uterus are good, etc. My HSG test initially came back fine and showed no obvious blockage in my tubes. My husband is a paraplegic and paralyzed from the waist down. That is one of the biggest reasons we have had to opt for IVF. After having a testicular biopsy we found out he had good sperm which was a great relief and our first cycle went perfectly, as best as we could expect …with the exception of a negative pregnancy test 3/19/09. The main meds I was on were: Menopur, Follistim, Ganirelix, Chorionic Gonad, Progesterone Oil, and the Vivelle-Dot Patches. My body responded so well to the Menopur and the Follistim, that the doses were decreased after just 3-4 days. My eggs grew fast and many and there were able to retrieve 18 eggs just 9 days after starting meds, 8 of which were stable enough to fertilize and 4 fully fertilized (2 A quality and 2 B quality). We had 2 embryos transferred on day 5. My entire cycle from starting meds to a negative pregnancy test was 25 days. After the negative pregnancy test I was told to stop all my meds, except my prenatal vitamins Prenexa. I had a heavy period for two days only starting 3/24/09 and spotted for a few days after. I went to my follow-up appointment on 3/24/09 and my doctor did an ultrasound and he found some fluid near my right tube, which has been determined to be Hydrosalpinx. I was told it was probably caused by a blocked tube that was not detected in my HSG test. Apparently those tests are only about 80% accurate and I feel in that 20% that did not detect a small blockage. We decided on surgery, a Laparoscopy, and it was scheduled for Friday 4/10/09. On Monday 4/6/09 I went to the hospital for my pre-op testing and pre-admittance. They took some blood tests and a urine pregnancy test. The doctor’s office called me Thursday 4/9/09 to say that my urine pregnancy test came back POSITIVE. I ran over to the doctor’s office to take a blood pregnancy test that also came back positive with a beta number of 324 and my surgery was canceled. I went back for another beta test on 4/11/09 and my number was only 459 and another one on Monday 4/13/09 and my number dropped to 439 and also had an ultrasound. Unfortunately it has been discovered that I have an ectopic pregnancy. I went in Tuesday 4/14 for the Methotrexate shots to stop the ectopic pregnancy and we will still go forward with the Laparoscopy after my tube has cleared from the ectopic. I bleed (not spotted, bleed) Wednesday – Saturday after the shots, with 2-days of heavier bleeding. I’m so devastated with the UPS and DOWNS in this one month and an emotionally drained after this past week! I mean, I had just gotten over the first negative pregnancy test and was totally prepared for the surgery and to move forward with a new cycle shortly after.

Update:
On 4/9 my number was 324, on 4/11 it was 459, on 4/13 it was 439, and I had the Methotrexate shots on 4/14. I went in yesterday 4/21 to check my numbers after 1 week and my numbers increased to 604. Is that normal, for the numbers to increase? Now I'm a little worried (should I be?) and my doctor is out of town until tomorrow, Friday. I don’t know what the next steps are yet. I would like to just get the surgery scheduled as soon as possible to have something to look forward to instead of the waiting game. I'm probably being a bit impatient??? I go back on Tuesday 4/28 for another blood test to check my numbers again. Anyone, anywhere had anything similar to this happen. It’s just all been so unusual.
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  #2 (permalink)  
Old 04-23-2009, 05:28 PM
makenalelu's Avatar
makenalelu makenalelu is offline
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Join Date: Feb 2008
Posts: 498
I don't want to scare you, but I would try to see someone as soon as possible.

I suffered an ectopic this summer. My initial numbers did the same thing, were't doubling and they couldn't find anything in the uterus. I had a methotrexate shot on a Thursday. That following Tuesday my tube had partially ruptured and I had to have emergency surgery in the middle of the night. The methotrexate shot sometimes doesn't work, or some people need more than one. If your betas are rising, that would mean the embryo is still growing, which can make you at risk for a tubal rupture.

If you have any pain what so ever, head straight to the doctor or hospital.

Again, don't want to scare you, but wanted to share what happened to me.

Good luck! You will get thru this!
__________________
TTC 20 months
29 (unexplained infertility)
DH 30 (Perfect little swimmers!)
2 Dogs (Lelu and Kenna) + 1 Cat (Killian)
9/07-11/07: 3 cycles of Clomid
4/1: First planned IUI
4/16:
Aug 15th: Natural Conception!!!!
Aug 15th: Beta 69
Aug 18th: Beta 169
Aug 20th: Beta 199
Aug 22nd: Beta 211, suspected ectopic
Sept 8th: Tube Ruptured, Emergency Surgery.
Feb 09 - IUI #2 + Injectables
Mar 09 -
3/5 Beta: 119 (11 dpo)
3/9 Beta: 902! (15 dpo)
3/11 Beta: 1950! (17 dpo)
3/19 U/S: TWINS!!!!
4/2 U/S: 2 Little Heartbeats!
6/15 U/S: Both babies 11 oz and perfect!
7/9 U/S: Both babdies 1 lb 4 oz and perfect!
8/14 U/S: Sloan - 2 lb 3 oz Jett - 2 lb 4 oz!
9/9 U/S: Sloan and Jett - 3 lbs 14 oz!
Born on 9/20: Sloan 4 lbs, 2 oz Jett 4 lbs, 3 oz

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  #3 (permalink)  
Old 04-23-2009, 07:15 PM
annabananas annabananas is online now
Member
 
Join Date: Jul 2008
Posts: 50
I had an ectopic recently also. My numbers were too high for the shot, so I had to have the surgery, but my doctors did say that after the shot the beta usually continues to rise for a few days, and then will gradually fall. Sometimes it can take several weeks for it to dramatically fall.
But...Makenalelu is right, the shot doesnt work for everyone after only one, so if you start to have any pain, go to the doc ASAP. Good luck, I hope this will be over for you as soon as possible. I felt the same way, ectopics just drag on forever, like theres no end in sight and its so hard emotionally. But just hang in there, and listen to your body!
__________________
Me: 26, low estrogen, history of Hodgkin's lymphoma, partially blocked right ovary
DH: 29, my ROCK! Swimmers look soso.
DD#1 Kuma (husky), DD#2 Maya (german shephard)
7/11/08-8/5/08 follistem/ovidrel #1
8/9/08-9/2/08 follistem/ovidrel #2
beta...6 - chemical preg.
10/3/08 round #3 same routine...
10/31/08 big cyst...2 weeks of bc
Onto the IUI...
1st IUI Nov 23
2nd IUI Christmas Eve...
1st beta 1/7/09 ....51
2nd beta 1/9/09...132
US scheduled for 1/23/09!!!!!
1/22/09....didnt even make it to the US.
3/4/09...IUI #3
3/18/09 beta...11
3/20/09 beta...27 hmmm
3/23/09 beta...102
3/30/09 beta...???
ECTOPIC....emergency surgery, lost right tube.

4th IUI Sept 3rd and 4th
9/14/09-9/18/09
9/20/09 beta 546
10/9/09 7wk us...TWO BABIES!
baby A hb 130, baby b hb 134...please please please stay nice and snug in there!
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Old 04-23-2009, 08:19 PM
Eytbol8 Eytbol8 is offline
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Join Date: Mar 2009
Posts: 34
[FONT='Verdana','sans-serif']Thanks annabananas & makenalelu. I do worry about a rupture and an defin on high alert for any unusual pains. I have not had any pains what so ever, no symptoms from the shot at all actually. I also worry about future ectopics with my next cycles. I don't usually so much about things somewhat out of my control, but the circumstances of this first cycle are worrying me. I am going to talk with my doctor tomorrow and I go back to get my numbers checked again on Tuesday. I am just really hoping they drop by a lot. Thanks for reading my LONG post and for your reply and support.[/font]

[FONT='Verdana','sans-serif'] [/font]
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  #5 (permalink)  
Old 07-23-2009, 07:34 PM
JillianS JillianS is offline
Junior Member
 
Join Date: Jun 2009
Posts: 9
Quote:
Originally Posted by Eytbol8
I've posted pieces of my situation, but wanted to post the whole thing here in hope for some support.

I am 35-years old and have had my first IVF cycle in Thousand Oaks, CA in late Feb/early March. All my pre-test came back great and I appear to have no obvious problems, ovaries are fine, tubes and uterus are good, etc. My HSG test initially came back fine and showed no obvious blockage in my tubes. My husband is a paraplegic and paralyzed from the waist down. That is one of the biggest reasons we have had to opt for IVF. After having a testicular biopsy we found out he had good sperm which was a great relief and our first cycle went perfectly, as best as we could expect …with the exception of a negative pregnancy test 3/19/09. The main meds I was on were: Menopur, Follistim, Ganirelix, Chorionic Gonad, Progesterone Oil, and the Vivelle-Dot Patches. My body responded so well to the Menopur and the Follistim, that the doses were decreased after just 3-4 days. My eggs grew fast and many and there were able to retrieve 18 eggs just 9 days after starting meds, 8 of which were stable enough to fertilize and 4 fully fertilized (2 A quality and 2 B quality). We had 2 embryos transferred on day 5. My entire cycle from starting meds to a negative pregnancy test was 25 days. After the negative pregnancy test I was told to stop all my meds, except my prenatal vitamins Prenexa. I had a heavy period for two days only starting 3/24/09 and spotted for a few days after. I went to my follow-up appointment on 3/24/09 and my doctor did an ultrasound and he found some fluid near my right tube, which has been determined to be Hydrosalpinx. I was told it was probably caused by a blocked tube that was not detected in my HSG test. Apparently those tests are only about 80% accurate and I feel in that 20% that did not detect a small blockage. We decided on surgery, a Laparoscopy, and it was scheduled for Friday 4/10/09. On Monday 4/6/09 I went to the hospital for my pre-op testing and pre-admittance. They took some blood tests and a urine pregnancy test. The doctor’s office called me Thursday 4/9/09 to say that my urine pregnancy test came back POSITIVE. I ran over to the doctor’s office to take a blood pregnancy test that also came back positive with a beta number of 324 and my surgery was canceled. I went back for another beta test on 4/11/09 and my number was only 459 and another one on Monday 4/13/09 and my number dropped to 439 and also had an ultrasound. Unfortunately it has been discovered that I have an ectopic pregnancy. I went in Tuesday 4/14 for the Methotrexate shots to stop the ectopic pregnancy and we will still go forward with the Laparoscopy after my tube has cleared from the ectopic. I bleed (not spotted, bleed) Wednesday – Saturday after the shots, with 2-days of heavier bleeding. I’m so devastated with the UPS and DOWNS in this one month and an emotionally drained after this past week! I mean, I had just gotten over the first negative pregnancy test and was totally prepared for the surgery and to move forward with a new cycle shortly after.

Update:
On 4/9 my number was 324, on 4/11 it was 459, on 4/13 it was 439, and I had the Methotrexate shots on 4/14. I went in yesterday 4/21 to check my numbers after 1 week and my numbers increased to 604. Is that normal, for the numbers to increase? Now I'm a little worried (should I be?) and my doctor is out of town until tomorrow, Friday. I don’t know what the next steps are yet. I would like to just get the surgery scheduled as soon as possible to have something to look forward to instead of the waiting game. I'm probably being a bit impatient??? I go back on Tuesday 4/28 for another blood test to check my numbers again. Anyone, anywhere had anything similar to this happen. It’s just all been so unusual.


Wow, you have had alot to deal with, hang in there. We did FET on 7/10, negative pregnancy test on 7/20, 3 days later still no period and basal temp high. Could the test be wrong?
__________________
Jillian

Me 37
DH 41
Henry 6


DX:
Me unexplained infertility
DH motility issues - too sloooooow....

TCC 2years

TX:
3/08 IUI
3/09 IVF 23 eggs, 15 fertilized, 5 frozen, 5 grew to blastocyst, transfered 1
7/09 first FET
7/10 FET transfer, 1 blast
7/20
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