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New to DE
Hi Everyone,
I don't even know where to start. Complicated and rare fertility issues....I have no sense of smell and never started my period....doctors diagnosed me with Kallmann Syndrome due to low FSH and LH and told me that injections would be a failsafe way for us to start a family. I only produced one follie my first cycle at 19.5 mm (admittedly on a lose dose), and produced four last cycle but they all stopped growing around 12-14 mm. My E2 has had trouble both cycles. About a month ago, the results of my karotype test revealed some chromosomal abnormalities. The geneticists at U of M told me that I don't really "have" Turner Syndrome because I basically have no real symptoms, but that it may effect my fertility. Since my last cycle was so awful, today I went in to have my AMH drawn to see what my ovarian age/reserve looks like. I just have a really bad feeling that the results are not going to be good. I have no idea where we will go from here. Will they let me try a 3rd cycle of injectibles, perhaps "upping" the dose? (I was on 150 units of Menopur last month.) I have a feeling all roads lead to donor eggs, which has been a hard pill to swallow but I'm actually getting kind of excited about it. It's just very hard to change expectations so frequently...the ups and downs are very difficult. Anyway, I'm wondering if any of you have had the experience of using a sister as your donor egg. My sister is 26 and ovulates normally....even though she's waaayyy better looking than me, we have been confused for twins and I'm excited about the possibility of using her eggs. My husband and parents are completely on board, and my sister was super excited about the possibility, too. If DE are the route we take, do they provide counseling for this? I'm wondering what kinds of things we should be taking into account if this is a venture we're going to take. Just wanted to say "hi" and share my experience since I'll probably be hanging out here for awhile. Hope all of you are finding success with your donors and get that you've been waiting for.
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Me- 30 (Kallmann's Syndrome, primary amenorrhea) DH- 28 (great guy, great swimmers!) Furbaby "Gatsby" (goldendoodle)8/09- Menopur produces one 19.5 follie 8/21/09 Karotype test reveals low-level mosaicism for Turner Syndrome, geneticists unable to shed much light on how this will effect fertility 9/09- Menopur produces lots of 14 mm follies that fizzle from lack of E2....cycle cancelled 10/09- BCP to reset cycle...a welcome break! AMH test done 9/26/09 and comes back at 6.7 "very good reserve" 10/30/09- Gonal F AND Menopur 11/6/09- LOTS of follies from 10-12 mm. E2 at 306...a record for me!! 11/8/09- UGH too MANY follies...E2 729, 10+ follies over 15 mm. Cycle cancelled |
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