Hi,
I was just wondering if there is anyone else out there that had to have a hysterectomy at a young age and what it was like. I had to have a hysterectomy at age 24. It was devestating as I was married only a few months. Ten years later I have 2 adopted boys. Would love to hear from others with similar situations and discuss experiences.

Lorie

I didn't have a hysterectomy but I might of well have. I had a Bone-Marrow Transplant at age 13 that gave me premature menopause even before I had my period. I am on HRT now. I am 25 now and I have been married for 5 years. I really really want to adopt a baby but my husband is terrified.

I get really sad when I see parents with thier babies and children. Most people don't have to be interviewed and screened and pay tons of money to get a baby it just happens. I just feel soo helpless knowing that I will never be able to get pregnant, I could try IVF but with tons of hormone shots and other stuff to trick my body to hold it in. But I just don't want to risk it.

Hello
My name is wendy. I am 28 years old. DH and I have been married for almost 8 years. I had to have a hysterectomy 4 months ago due to severe endometriosis. It has been a very devastating thing for me to have to deal with. I was glad to see that there is someone else out there that has been through this!! I know Im not the only one but it is hard to find people as young as us that have been through a hysterectomy already. DH and I are hoping to start the adoption process soon. It isnt fair that it costs so much I agree with that. I have had to deal with alot of hurt feelings seeing other people having babies like rabbits and here we are with empty arms. It hurts there is no denying that is there?? Right now I am just trying to A. Regulate my hormones..lol and B. Stay focused on adopting a little one. After all, being pregnant is only 9 months of the whole wonderful parenting experience.
Hope to hear from you soon!
I would love to hear your story!

Wendy

Have not had the surgery yet, but 6 years ago was told I had sever endo.If my then fiancee and I wanted a child together we had to do it then. Well after 6 months and nothing, we started fertility drugs. On what was supposed to be the last cycle and last chance to get preg. we got preg..At 5months labor started due to a very damaged uterus. They kept my labor off auntil 8mths.We have a wonder little boy now, but I did not want that to be the end of our family. My doctor says NO MORE BABIES! She's says my uterus would not make it and it would possibly kill me and for sure the baby. She says my body was not made for having babies..We have been putting off the surgery, because she says the older I get the easier it will be to balance the hormones. So, I go next year when I turn 30.We have been using birthcontrol to kind of keep it under control. We are trying to adopt right now.

Hi, my name is Michelle. I am 30 yrs old and was supposed to have one by now (hysterecomy). I have severe endo, and I am too chicken to get it done. Both my regular gyn and my specialist have since retired and I don't even have a gyno at this point.I have already started the adoption process and just waiting for case worker to get her butt in gear and get the paperwork done. AFTER the adoption is final I will get it done. I want to make sure I have my family first. If the adoption did not go through, hubby and I were thinking to try a few more rounds of fertility treatments.....
To be honest with you...I think my body is going through it already on its own (menopause)..I have started with the sweats and the mood swings, my cycle is more messed up than its ever been. I know, I know....go to a doctor...but I am going to still wait longer.....

Well ,thats my story (short version)...Remember..you are not alone.....

~Michelle

Hi-

I'm 26 and like Pigletk I have premature ovarian failure due to radiation therapy at age 5 for cancer. I have been on HRT since I was 12 and we tried IVF with donor eggs 3xs but it never worked. It took a little while for my husband to come around to adoption but he is really excited now and so am I (I've always been told it was very likely that i would not be able to become pregnant, so i've thought about adoption for years).

We haven't adopted yet but are anxiously and excitedly awaiting our first baby!

Erin

Hi-

I'm 25. I have stage IV+ endo that wasn't discovered until last July through a laparoscopy. I was diagnosed with PCOS almost three years ago which I thought was the primary cause of my infertility. I've done 7 rounds of Clomid, 3 rounds of injectables, and surgery and called it quits before we got our hearts broken any more with IVF failures. I had a laparoscopy in July to confirm Endo. Who would have thought I would have a severity my RE had yet to see in his entire career, never ming someone my age! To top off Endo, I have adenomyosis, a completely damaged right tube, and my left tube is barely intact. To make matters even stranger, the chances of having both PCOS and Endo are extrememly rare. Who would have thought that someone so seemingly healthy has a completely diseased reproductive system? When they cleaned up my endo, I had organs attached to one another with scar tissue. It was a very painful surgery that I will probably have to face again until I decide to do the hysterectomy. Taking the pill now. Seems to be working on keeping the endo under control.

My husband & I are in the early stages of adopting a child from the foster care system. I would love to make some e-pals who are adopting and dealing with this terrible disease at the same time!

kristin

Kristin, I would love to be your epal. We too are adopting from the state, so we have that in commmon as well. PM and we can exchange email if you would like..

My email is zaye00@yahoo.com I am 27 today.I want a baby more than ever. I had a hysterectyomy 2 years ago after been married 1 year. I had severe endometriosis. I Suffered all my life since 12 years of age.

I was 24 when i had to have a complete hysterectomy due to sever endo and non cancerous polyops and fibroids. My uteris was actually trying to discard itself. the doctors were amazed by this fact,(I however was NOT). My husband and I tried for five years and no babies. I was diagnosised with PCOS at the age 19 just to be told that the new doctor actually said i had already been rx at 14 (no one told me or my mother) We (dh and I) are currently foster parents, getting ready to adopt through the state system. Would welcome others with the same situation.

jody

I was first told I would have to have a hysterectomy when I was 13.. but they told my mom to wait until I was 18 or so.. I am now 32 and have not had it.. but I do have severe PCOS and endometriosis.. have had several open abdominal surgeries, asn well as a few lap's to removed scar tissue..

We have tried fertility treatments (they kept telling me that if I got pregnant it might actually make things better in the long run) but my overies kept getting over stimulated and I was in pain all the time..

So.. no more trying for us.. I am off the pill though after 17 years I needed a break.. I still have pain daily, but want to wait until after we have a family to get the surgery.. we are currently foster parents to a wonderful 15 year old.. and we are matched with an expectant mom due is July!!! )

Mandy

Well it sounds like everyone here has had endometriosis, but I had my hysterectomy due to cervical cancer. I had had some previous medical problems in my 20's, and was told that it may be dangerous to try to carry a baby, so I adopted my daughter when I was 28. That same year I found out I was pregnant, but then had a miscarriage at 11.5 weeks. It was after that that I found out I had cervical cancer and had to have the hysterectomy and one ovary removed (because of residual scar tissue from previous abdominal surgeries).

When the pathology was done, they found out that the cancer had not spread into my uterus, so I basically had it done for nothing. After feeling sorry for myself and being angry at the doctors, I relaized that it wasn't doing me any good, so I should move on and provide a home for another child that didn't have one. That was when I adopted my son....last year. It has been a long journey, and the possibility is still there for me to retreive eggs from my remaining ovary, but after adopting my two great kids, I'm not even sure I'd want to put myself through that.

I've been fairly lucky about not having too many menopausal symptoms. But for the first year after surgery, I often used Vitamin E, B-5, and B-12 to control moodiness....it really helped!

Renee