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#1
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Having SCARY side effects on Lupron
Hey girls,
We started Lupron 2 days ago. The first night, my right leg (injection site) just went numb and felt like my leg was asleep the rest of the night. On the second night, we injected in the left side and my ENTIRE left side of my body went numb. It was like from my toes to my scalp it had fallen asleep. It even happened in my throat, which was scary. After calling my RE's emergency number, he told me to double dose on benadryl and not take it Sunday, and call my doctor Monday. Has this ever happened to anyone? It is th next morning now, and I still don't feel right. The left side of my body, my arms and face in particular, and still pretty tingly. I am really freaking out and scared that I could be allergic and this will prevent us from doing IVF. Has anyone ever experienced these bad side effects from Lupron? According to it's side effect list, this isn't normal! HELP!!
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Me, 26 - 100% ok DH, 27 - Count - 2 million, Morphology - 1%, Motility - 30%, Sperm Antibodies TTC since June 2008 6/29/09 -1st IUI w/ 50mg Clomid 2.1 mill motile, found Sperm Antibodies ![]() 7/12 - ![]() 8/7/09 - 2nd IUI 900,000 sperm after wash 9/4 - 1st IVF ER 2/4 (20 retrieved, 17 fertilized!) ET 2/9 2 perfect 5d blastocysts 12 Perfect Frozen Embryos 1st BETA 2/18 2nd IVF (FET)- June 2010 Transfer - 6/16 - 3 expanded blast!! ![]() HPT 6/23 - ![]() 6/25 Beta 1 - 128!!! 6/29 Beta 2 - 667 7/6 (due to spotting) 1st U/S - TWINS!! 7/14 (6w5d) lost one baby due to blood clot, other baby doing great 10/19 It's a boy! Blue Team! Garrett Conley - born 2/9/11!! So blessed. |
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#2
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Hum...that doesn't sounds good. I started my injections last Thursday. Side effects so far have been constant headache, nausea and this morning I had a hot flash.
Let me know what you learn!
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__________ Melissa Me - 36; mild PCOS DH - 37 (18 yr son); azoospermia Married: Oct 2007 TTC: Jan 2008 IVF#1 BCP: 1/4/10 - 1/20/10 Lupron: 1/14/10 Follistim & Microdose Ovidrel (HCG): 1/29/10 ER - 2/09/10 (20 eggs retrieved; 8 embies growing) ET - 2/14/10 (2 blasts) 2/24/10 - beta #1 488 2/26/10 - beta #2 890 (progesterone 236 - discontinued supplemental prog) 3/2/10 - early ultrasound...it's twins!!! 3/10/10 - u/s - twin A 117 HB; twin B 122 HB - can't believe it! Feb. 2009 IVF Group Calendar- http://www.my.calendars.net/020110 Feb. 2009 IVF Group List- http://feb2010ivf.wikispaces.com/ |
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#3
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Oh my goodness..It doesn't sound like Lupron is working well with your body. A few months ago, some guy posted a story on this website of something similar that happened to his wife when she took Lupron,,,but her situation was worse. I'm going to go see if I can find it and post the link here.
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Me: 36 (1 ovary, no tubes) DH: 49 (MFI) using donor sperm When the world says, "Give Up", Hope whispers, "Try it one more time" IVF#1 April/May 2010 Antagonist Protocol w/early miscarriage 7-24-10 2 cysts found, RE unable to aspire cysts due to borderline Estrogen and unusually low FSH level...cycle delayed Cysts still there, but too small to be aspired, and not big enough to delay cycle. 10-2-10 Started Lupron Flare Protocol. Lupron Menopur Follistim **here we go again** Estimated ER Oct 12th-14th poor response cycle cancelled. ![]() 12-31-10 U/S. 1-1-11 Start New Menopur/Bravelle/Lupron IVF Protocol if U/S shows no remaining cyts.
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#4
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Thank you so much! My RE said in his 20 years he has never had anyone react this way and wants me ff it immediately. My first thought was a stroke or something, and scared me so much. Luckily there is an alternative - galetrex? Haven't seen it spelled yet! I just pray I don't have the same allergic reaction to it also. It was so scary, and of course so upsetting that we are finally starting IVF and THIS happens!!! Ugh!!!
__________________
Me, 26 - 100% ok DH, 27 - Count - 2 million, Morphology - 1%, Motility - 30%, Sperm Antibodies TTC since June 2008 6/29/09 -1st IUI w/ 50mg Clomid 2.1 mill motile, found Sperm Antibodies ![]() 7/12 - ![]() 8/7/09 - 2nd IUI 900,000 sperm after wash 9/4 - 1st IVF ER 2/4 (20 retrieved, 17 fertilized!) ET 2/9 2 perfect 5d blastocysts 12 Perfect Frozen Embryos 1st BETA 2/18 2nd IVF (FET)- June 2010 Transfer - 6/16 - 3 expanded blast!! ![]() HPT 6/23 - ![]() 6/25 Beta 1 - 128!!! 6/29 Beta 2 - 667 7/6 (due to spotting) 1st U/S - TWINS!! 7/14 (6w5d) lost one baby due to blood clot, other baby doing great 10/19 It's a boy! Blue Team! Garrett Conley - born 2/9/11!! So blessed. |
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#5
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Ok, here is the blog website from the guy that posted on this website (under user name "Lupronisnogood")
Dream Pregnancy: Stroke she claims Lupron caused her to have a stroke. There is no complete evidence that Lupron actually caused the stroke. So please don't get freaked out that you may be having a stroke. However, I do believe, that you should STOP taking it until you receive further instructions from your doctor, because the side effects you mentioned sound scary. good luck.
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Me: 36 (1 ovary, no tubes) DH: 49 (MFI) using donor sperm When the world says, "Give Up", Hope whispers, "Try it one more time" IVF#1 April/May 2010 Antagonist Protocol w/early miscarriage 7-24-10 2 cysts found, RE unable to aspire cysts due to borderline Estrogen and unusually low FSH level...cycle delayed Cysts still there, but too small to be aspired, and not big enough to delay cycle. 10-2-10 Started Lupron Flare Protocol. Lupron Menopur Follistim **here we go again** Estimated ER Oct 12th-14th poor response cycle cancelled. ![]() 12-31-10 U/S. 1-1-11 Start New Menopur/Bravelle/Lupron IVF Protocol if U/S shows no remaining cyts.
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#6
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I think its called Ganirellex.
I hope that I dont get nasty side effects once I start Lupron.Heck, I've waited so long to start IVF...so I know how it feels when there are set backs. Big to you.....hopefully in the next few weeks I can read that you are ![]()
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Me: 36 (1 ovary, no tubes) DH: 49 (MFI) using donor sperm When the world says, "Give Up", Hope whispers, "Try it one more time" IVF#1 April/May 2010 Antagonist Protocol w/early miscarriage 7-24-10 2 cysts found, RE unable to aspire cysts due to borderline Estrogen and unusually low FSH level...cycle delayed Cysts still there, but too small to be aspired, and not big enough to delay cycle. 10-2-10 Started Lupron Flare Protocol. Lupron Menopur Follistim **here we go again** Estimated ER Oct 12th-14th poor response cycle cancelled. ![]() 12-31-10 U/S. 1-1-11 Start New Menopur/Bravelle/Lupron IVF Protocol if U/S shows no remaining cyts.
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#7
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Hi...so I just created a thread re: Lupron side effects...didn't read far enough down. I have had 3 injections and so far am having a constant headache, nausea, exhaustion and sore boobs. I think this is pretty routine from what I am reading...still not fun though.
MelnMick Sounds like we are pretty close on our cycles...good luck to you! But it's all worth it in the end...right?
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_____________________________________________ 12/08 - Started TTC 4/09 - MC @ 5wks 12/09 - DX Severe Male Infertility IVF w/ ICSI #1 1/9/10 - Day 1 1/11/10 - Started BCP Desogen 1/18/10 - Started Leuprolide Acetate Injections 2/3/10 - Baseline Check = Right 11, Left 12, E2 21 2/6/10 - Start Follistim 225 2/8/10 - Stim Check = Right 11, Left 12, E2 158, decrease Follistim to 150 2/10/10 - Stim Check = Right 14, Left 10, Largest 14.4mm, E2 2/12/10 - Stim Check 2/17/10 - ER!!!! 2/22/10 - ET Scheduled “Before I formed you in the womb I knew you, and before you were born, I consecrated you…” – Jeremiah 1:5 Last edited by ralphysmom : 01-20-2010 at 06:24 PM. |
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#8
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Painful
I started Lupron 1.5 weeks ago. Since I started taking the injections my left arm has been numb and sore. I feel very weak. My lower back is also sore. Nobody warned me about these side effects. I feel really down (mood) and I am super sensitive. This morning when I woke up, I felt numbness and tingling in the left side of my face. That was super scary!
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#9
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Quote:
Call your doctor IMMEDIATELY!! Lupron has been known to cause massive strokes, and the numbness on one side of the face is NOT normal. It was what I had after my second dose. You can switch to an antagonist - ganirelix. It does the same thing as lupron, but I had no side effects with it. Google some lupron/strokes incidents, it's not worth that risk!
__________________
Me, 26 - 100% ok DH, 27 - Count - 2 million, Morphology - 1%, Motility - 30%, Sperm Antibodies TTC since June 2008 6/29/09 -1st IUI w/ 50mg Clomid 2.1 mill motile, found Sperm Antibodies ![]() 7/12 - ![]() 8/7/09 - 2nd IUI 900,000 sperm after wash 9/4 - 1st IVF ER 2/4 (20 retrieved, 17 fertilized!) ET 2/9 2 perfect 5d blastocysts 12 Perfect Frozen Embryos 1st BETA 2/18 2nd IVF (FET)- June 2010 Transfer - 6/16 - 3 expanded blast!! ![]() HPT 6/23 - ![]() 6/25 Beta 1 - 128!!! 6/29 Beta 2 - 667 7/6 (due to spotting) 1st U/S - TWINS!! 7/14 (6w5d) lost one baby due to blood clot, other baby doing great 10/19 It's a boy! Blue Team! Garrett Conley - born 2/9/11!! So blessed. |
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#10
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Side effects on Lupron
Hi. I took my last shot of Lupron on Friday because it was making my legs and feet numb and tingling. The doctor said he has never had this happen before so I dont know what to expect. That it will go away? Come completely back? No one has any advise. I saw that this is a severe reaction. Any advise?
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#11
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@AHgraves: Has your numbness/tingling gone away?
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