[D&Q'sMommy]

Monochronic Twins with TRAPS Syndrome - Acardiac Twin
First off, has anyone ever heard of this? I hadn't until I was told at 20 weeks 3 days. Basically, I was pregnant with twins, didn't know it until the 20 week ultrasound, and they shared one placenta. What happened is that our "pump" twin, Denton, was perfectly healthy, no physical anomalies or anything. Then Baby B, Quinton, was a acardiac twin. It means, no heart. I was supposed to have surgery at the Cincnnatti Hospital on the 9th and I went into labor on the 7th and delivered on the 8th of June. I was 21 weeks and 3 days.

I feel so alone with this. I know I am not alone when it comes to pregnancy loss, but because this is such a rare, (1 in 35000) occurence, I am reaching out to see if anyone else has experienced this. I also lost 60% of my blood and having 4 blood transfusions. I remember holding Denton and having him die in my arms. He lived for 17 minutes. They never let me see Quinton because he came out first and because he had physical anomalies that were incompatible with life, they thought I wouldn't want to see him. I only have a few pictures of him.

If there is anyone who has heard of this, who have experienced this, I am reaching out. I feel so alone.

[ara79]

Oh sweetie, my heart aches for you. I have no experience with this, I just had to tell you that I am so very sorry for your horrible loss. I hate that you feel so alone. You are in my prayers. I also read your other post and I think that what you are feeling is very normal. You went through a tramatic loss and you need time to heal. I know my words don't help. I am so sorry.

[MrsM]

I am so sorry for your loss. There are no words to adequately sum up what you are going through.

There are many of us who have lost late pregnancies, including multiples, on this forum, but I do not know of anyone that has experienced something similar. Hopefully someone will post that will help you find some answers.

Just take the time you need to grieve, I know you will find support here, even if it is just words of encouragement to help you get through this.

Sending you lots of .

[bunniswife]

I'm so sorry, not only for your losses but for the trauma your body went through while delivering your boys. There is no worse pain than losing a child, I too held my son while he died in my arms. That said, it should have been your choice as to whether or not you wanted to hold Quinton. He was your child, defects or not and you deserved the chance to hold him and take the time to remember every little detail about his little body for all it's perfections and imperfections. I can't imagine how blurry all of this must be for you which must make it that much harder to remember everything. All I can offer you is hugs of understanding and a place to go if you need to talk. There is a beautiful website for parents who have lost their babies at any stage gestation or to neonatal death. You will find so much support and caring there, truly, you will realize that people who have never lost a child are incapable of understanding the depth and breadth of your pain. The website is called Glow in the Woods and here is the address. Sending you hugs

glow in the woods - home

[D&Q'sMommy]

Thank you ladies for all your encouragement. I helps me to not feel so alone.