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  #1 (permalink)  
Old 12-01-2007, 02:44 PM
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natalie28 natalie28 is offline
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Posts: 283
High FSH levels anyone?

I am new here so I may have just missed when some of you have already talked about this, but I have an FSH of 51. I was diagnosed with cancer (Hodgkin's Disease) two years ago and have completed chemo and radiation now. I questioned 12 doctors including my gyno about saving eggs and was told that it was not needed. Now it turns out that it was. A couple of months ago I was diagnosed with POV. Has anyone had any luck dispite a high FSH level? My age is the only thing my specialist thinks that I have going for me(28).
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Old 12-27-2007, 08:31 AM
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I'm sooo sorry to hear how your cancer may have affected your fertility. As if you haven't gone through enough.

My iui cycle for this month was just cancelled due to high FSH levels (36). I have a consult scheduled with RE on 1/10 and I'm assuming some more testing in the future. Let me know how things go for you?
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Shelli

Me 35 High FSH (37), POF?
DH 40 Perfect
Sonny 13 year old Golden
7/07 1st IUI w/clomid -BFN
8/07 2nd IUI w/clomid -BFN
11/07 3rd IUI w/follistim -BFN
12/08/07 4th IUI w/follistim -BFN
7/22/09 Getting started with IVF...Ahh!














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Old 01-13-2008, 07:24 PM
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natalie28 natalie28 is offline
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Posts: 283
Thanks

Thanks Shelli! I am sorry that I have not checked back in a couple of weeks. The DH and I have decided that we want to try a DE with IVF. The RE thinks that is our best option. We are going to try round one in April so wish us luck.
natalie28

me-28
DH-28
2 Dogs- Butter and Maggie
- 2 cats- Josie and Scruffy
2005- diagnosed with Hodgkin’s
9/06 - Finished chemo and radiation
10/07- First meeting with RE to find out that the chemo caused me to go into early menopause and have POF (even though I asked about saving eggs)
10/07 FSH at 51
12/21- FSH at my lowest- 38
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Old 01-14-2008, 04:22 PM
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Natalie- Last week at my counsult we discussed DE with IVF also since this would be my best chance. I've been reading alot about POF and infertility and have found some forums where women have had success with their own eggs. In fact, my RE recommended I take an over the counter hormone, DHEA, b/c they found that it helps the ovaries produce higher quantity and quality eggs. I go back in a few months to see if that makes a difference and we can maybe do one more IUI b4 moving on to IVF. Good Luck with your IVF. At least our uterus is ok !
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Shelli

Me 35 High FSH (37), POF?
DH 40 Perfect
Sonny 13 year old Golden
7/07 1st IUI w/clomid -BFN
8/07 2nd IUI w/clomid -BFN
11/07 3rd IUI w/follistim -BFN
12/08/07 4th IUI w/follistim -BFN
7/22/09 Getting started with IVF...Ahh!














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Old 01-15-2008, 04:37 PM
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biggsista biggsista is offline
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Posts: 558
Hi Ladies,
My high was 20.1 and am pregnant using doner sperm (my husband had some low numbers)-

I too was told our chances would be slim unless using doner everything...WRONG
I say if you have the money at least try your own first.. remember low supply does not mean all the time that whats left is bad..I also believe that living healthy helps as well..diet, no alchohol, excercise, no smoking etc..helps with the quality of your eggs..
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~~~~~~~~~~~~~~~~~~~~~~~
me-36 High FSH-Hypothyroid
dh-40 Low everything
IUI 1 & 2-Clomid 100mg-Failed
IUI 3 & 4/375 Gonal F 9/24 & 9/25-Failed
IVF/ICSI Nov-One Egg Failed
DEC-JAN-FEB= Hibernation
March 12th- start stims- Lupron 2x, 150 Repronex, Gonal 375
(Holy cow I'm a walking Hormonal ..... )
ER- 3/30 One Egg
4/2 Transfer
Beta 4/13 Low positive-
#'s dropping- Miscarriage
~~~~~~~~~~~~~~~~~~~~~~~~~
Going to start trying unmedicated IUI's (cheaper alternative)
IUI- October 12th
1st Beta- 21dpiui Fri Nov 2nd- + 4989
Spotting
1st Ultrasound Nov 14th ~HB 135
Next ultra Dec 3rd - all is great!
12/26 NT Scan waiting results~measured 13wks
1/21 Next Ultrasound~HB 150
2/21 Gender Scan- resescheduled for monday
HB 158
2/25 ITS A BOY!!!
07/02/08 Jr is born!!
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Old 01-16-2008, 11:46 AM
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sunshine sunshine is offline
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That's great that you were able to get pg with your own eggs! I'm hoping to get at least one more try in. I'm trying to start a "fertility diet" as well but I'm dreading giving up cafeine- the headaches will not be fun. Thanks for the encouragement and congrats!
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Shelli

Me 35 High FSH (37), POF?
DH 40 Perfect
Sonny 13 year old Golden
7/07 1st IUI w/clomid -BFN
8/07 2nd IUI w/clomid -BFN
11/07 3rd IUI w/follistim -BFN
12/08/07 4th IUI w/follistim -BFN
7/22/09 Getting started with IVF...Ahh!














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Old 01-16-2008, 12:40 PM
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ScootiesGirl ScootiesGirl is offline
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Posts: 1,040
In addition to lifestyle changes consider acupuncture as well. I'm hoping it has helped both myself and DH. DH goes for his SA tomorrow and I'm waiting for AF so I can get my FSH testing. We're on our third try with hopes that all our changes have helped. Good luck to you on your journey.
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Kelli
Me-37 (DOR)
DH -42 (MF)
Bella
Cooper

TTC - 7 years
Sept. 2004 - IVF (BFN), Dec. 2004 - IVF (BFN)
2005-2007 - Break (TTC Naturally)
3rd IVF March 2008 - BFN, continuing acupuncture, DHEA & Royal Jelly.

New RE
IVF #4 - September (Antagonist Protocol)
ER 9/19 Four eggs retrieved. 9/20 - All four fertilized and looking great!
ET - 9/22. Two great embabies transferred with assisted hatching. Come on embabies snuggle in!
Beta 10/1 - 39.5 , Beta 10/3 - 77.4 , Beta 10/6 - 208, Beta 10/13 - 2,278
1st Ultrasound 10/20 - one little bean and we saw the heartbeat!! 2nd Ultrasound 10/28 - heard the heartbeat and baby doing great!
Graduated to the OB! Due Date June 12, 2009
Our little miracle...Devon Noble born June 15, 2009 - 10lbs, 1oz, 22" long.

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Old 01-16-2008, 03:12 PM
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sunshine sunshine is offline
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Posts: 174
I've noticed quite a few girls have been trying accupunture. I will definitely look in to it. Good luck to you too.
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Shelli

Me 35 High FSH (37), POF?
DH 40 Perfect
Sonny 13 year old Golden
7/07 1st IUI w/clomid -BFN
8/07 2nd IUI w/clomid -BFN
11/07 3rd IUI w/follistim -BFN
12/08/07 4th IUI w/follistim -BFN
7/22/09 Getting started with IVF...Ahh!














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  #9 (permalink)  
Old 02-07-2008, 01:51 PM
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DeannaRN DeannaRN is offline
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Posts: 641
I've heard that acupuncture and chinese medicine is the way to go when you have high FSH. Many women have been successful at decreasing their FSH levels with herbs, acupuncture, diet changes, exercise, stress managegment, etc. My highest FSH is 28 and I was devestated to hear that news. I'm still hoping that I will get pregnant. It seems that high FSH makes you less responsive to the medications they give you to produce many follicles. My thoughts are that it only takes ONE good egg. It can happen even if the doctors tell you the chances are slim. Don't give up.
__________________

38, DOR, MTHFR on Lovenox(compound hetero), carrier of Fragile X.
DH- 42, spinal cord injury, TESE found 0 sperm
DS- 16 from prior marriage
6 IUI's

IVF #1 10/08 chemical preg
IVF #2 5/09 DE/DS in Czech Republic chemical preg
IVF #3 8/09 Going back to Czech Republic We're not giving up yet
8/13 ER
8/18 ET 3 grade 1 blasts
8/25 + HPT
8/27 (9dp5dt) beta 252
8/31 (13dp5dt) beta 1856
9/4 (17dp5dt) beta 8984
9/14 u/s 2 sacs and 2 heartbeats. Baby A measuring 6w2d. Baby B measures 6w5d. TWINS!!
9/28 Both babies lookin good with strong heartbeats.
10/23 NT scan

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Old 02-09-2008, 07:10 AM
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sunshine sunshine is offline
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Posts: 174
I'm doing the diet thing now and hoping for the best. I looked a little into accupunture, but I didn't find too much in my area and it seems a little pricey. I know it's nothing compared to what IVF will be if we have to go that route, but it's just not in the budget right now. I really hope you'll be getting a BFP soon, good luck!
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Shelli

Me 35 High FSH (37), POF?
DH 40 Perfect
Sonny 13 year old Golden
7/07 1st IUI w/clomid -BFN
8/07 2nd IUI w/clomid -BFN
11/07 3rd IUI w/follistim -BFN
12/08/07 4th IUI w/follistim -BFN
7/22/09 Getting started with IVF...Ahh!














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Old 02-09-2008, 08:56 PM
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chickycran chickycran is offline
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Join Date: Sep 2007
Posts: 365
Hi. I've recently been diagnosed with POF, my highest FSH was 24.3. I just got the official diagnosis yesterday and I'm devestated. I've been reading a lot about naturally lowering FSH and I've been drinking the Naked Juice Green Machine daily since it has wheat grass juice in it. What is the "fertility diet" Sunshine? I'm curious and would like to try it.

Do you all still have hope of conceiving with your own egg? I'm feeling pretty hopeless right now. It was good to read Bigsista's story.
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Danielle - TCC 7 years

Me: 33, DOR, high FSH, >0.1 AMH & endo (RE said less 1% chance I can conceive with my own eggs)
DH: 37, count, morph, and motility low. Motility is improving with vitamins.

TCC since Aug. 2001 - BFN every cycle
4 IUIs (3 medicated), all BFN
Laparoscopy; 10/23/07 - cleaned up stage II endo

Moved to the fertility friendly state of MA this summer and we have a great new RE.

IUI #4:
10/25/08 & 10/26/08 Back to back IUIs (Clomid 100 mg, Ovidrel, Crinone). Beta 11/10/08. BFN

IUI #5: 1/9/09 & 1/10/09 Back to back IUIs (600 IU Gonal-F, Ovidrel hcg trigger, Crinone 8%), 2 follies
Beta 1/26/09 BFN

Natural Cycle TOTAL SHOCK (stopped trying - did everything I wasn't supposed to)
4/11/09: on HPT
4/13: Beta 68
4/15: Beta 125
4/23: Beta 1418
5/8: U/S showed no HB, measured too small
5/14: U/S showned no HB and still too small
5/15/09: D&C



2 furry dog children ( Mickey & Mudge)


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  #12 (permalink)  
Old 02-11-2008, 04:41 PM
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sunshine sunshine is offline
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Posts: 174
I'm so sorry about your most recent #s. This just plain sucks. The Fertility Diet is by Jorge E. Chavarro and Walter C. Willett. I ordered it from Amazon for about $15 and got it in about 2 or 3 days (ground shipping!) It's all about how to make food work for you to boost ovulation. It also tells you what foods actually hurt ovulation. Pretty interesting stuff. I also have The Fertility Cure, but haven't started on that one yet.

I was extemely devastated when I first got the diagnosis and I did alot of reading online about it, which did not help me at all -they make it sound like the kiss of death. I'm still hopeful that I can get pg with my own eggs and I'm not going to give up yet. I hope you feel better once you are able to process everything.
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Shelli

Me 35 High FSH (37), POF?
DH 40 Perfect
Sonny 13 year old Golden
7/07 1st IUI w/clomid -BFN
8/07 2nd IUI w/clomid -BFN
11/07 3rd IUI w/follistim -BFN
12/08/07 4th IUI w/follistim -BFN
7/22/09 Getting started with IVF...Ahh!














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Old 02-11-2008, 05:20 PM
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DeannaRN DeannaRN is offline
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Posts: 641
It's so great to see some ladies on here that have high FSH. When I tell some people, they have no idea what I'm talking about, but you ladies all understand it. Biggsista's story is inspirational. I think I will look into that Fertility Diet.
__________________

38, DOR, MTHFR on Lovenox(compound hetero), carrier of Fragile X.
DH- 42, spinal cord injury, TESE found 0 sperm
DS- 16 from prior marriage
6 IUI's

IVF #1 10/08 chemical preg
IVF #2 5/09 DE/DS in Czech Republic chemical preg
IVF #3 8/09 Going back to Czech Republic We're not giving up yet
8/13 ER
8/18 ET 3 grade 1 blasts
8/25 + HPT
8/27 (9dp5dt) beta 252
8/31 (13dp5dt) beta 1856
9/4 (17dp5dt) beta 8984
9/14 u/s 2 sacs and 2 heartbeats. Baby A measuring 6w2d. Baby B measures 6w5d. TWINS!!
9/28 Both babies lookin good with strong heartbeats.
10/23 NT scan

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Old 02-12-2008, 07:37 AM
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sunshine sunshine is offline
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Posts: 174
Deanna- I saw in your signature that you are planning another IUI, so your RE must think you have a good chance, which it GREAT! My old RE cancelled my 5th cycle after he saw my # and didn't seem to think I would have any success at all with IUI and I should move straight into IVF with donor eggs, so I got a 2nd opinion. My new RE ran a bunch of tests and they all came back normal (yea!), so I'm just waiting for AF so we can do another 3 day FSH test. I'm not expecting my #s to drop to like 4 or anything, but I'm hoping my diet and exercise changes will show some improvement. I am also inspired by Biggsistas story and I hope we will all have our own story too.
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Shelli

Me 35 High FSH (37), POF?
DH 40 Perfect
Sonny 13 year old Golden
7/07 1st IUI w/clomid -BFN
8/07 2nd IUI w/clomid -BFN
11/07 3rd IUI w/follistim -BFN
12/08/07 4th IUI w/follistim -BFN
7/22/09 Getting started with IVF...Ahh!














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Old 02-12-2008, 09:56 AM
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DeannaRN DeannaRN is offline
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Join Date: Sep 2007
Posts: 641
Shelli, my RE does think I have a chance with IUI's. We haven't even discussed IVF at this point. I've been doing acupuncture twice a week for 3 months. I haven't had my FSH tested since October when it was 28. But my antral follicle count increased from 7 to 11, so I'm encouraged by that. I kinda feel like I may be more successful with natural IUI's then with IVF.

That's great news about your test results. I hope your next FSH is lower too. I just started AF this morning so I'll be seeing my RE in a couple days and hoping my estradiol level is low. It was too high this last cycle to do injections but if it's low, I'll start Follistim in a couple days.
__________________

38, DOR, MTHFR on Lovenox(compound hetero), carrier of Fragile X.
DH- 42, spinal cord injury, TESE found 0 sperm
DS- 16 from prior marriage
6 IUI's

IVF #1 10/08 chemical preg
IVF #2 5/09 DE/DS in Czech Republic chemical preg
IVF #3 8/09 Going back to Czech Republic We're not giving up yet
8/13 ER
8/18 ET 3 grade 1 blasts
8/25 + HPT
8/27 (9dp5dt) beta 252
8/31 (13dp5dt) beta 1856
9/4 (17dp5dt) beta 8984
9/14 u/s 2 sacs and 2 heartbeats. Baby A measuring 6w2d. Baby B measures 6w5d. TWINS!!
9/28 Both babies lookin good with strong heartbeats.
10/23 NT scan

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