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Cornell has a great reputation within the industry. So does CCRM.
Over the internet, I've heard patient issues with both. Patients at Cornell have complained of being treated impersonally ("just a number"). One at CCRM complained of being deceived by a claim that CCRM doesn't screen patients, but $5000 in diagnostics later, she was told she might not qualify for IVF. She then cycled at Shady Grove with no hassle and had a live birth first time. |
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Well, I had my consult with Dr. Saleh this afternoon (SIRM DALLAS). He was very thorough, sensitive and honest. One thing that I appreciated was that he did not automatically discount my local IVF doc. He said that he agreed with all the protocols used, but with my high FSH levles (10 and 9) he would not recommend another IVF. He said go straight to donor. I'm still waiting on the consult with the CCRM but I really appreciate his honesty and altruism in not trying to "sell" me another cycle. I'm only 34 - should I give up on having my own child because of my FSH ? This is the only time I was ever told my FSH was high. It was always "unexplained infertility" until this point. After two f'n IVFs. I think my IVF doc was sugarcoating .......
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Me: 34, FSH 10.3, 9.6 AFC 13 DH: Perfect Two wonderful furbabies so far !2007 - 2008 5X IUI, all Feb 2009 Cyst - IVF cycle cancelled May 2009 First IVF 3 eggs retrieved, all fertilized 3dt all three eggs Sept/Oct 2009 Second IVF "Flare" protocol Stim Start Wed. 9/30 Trigger: 10/9/09 Follies: 21, 19, 17, 15, 14 E2: 1200 Lining: 12mm ER: 10/11/09 - 2 eggs retrieved 10/12/09: No fertilization, even with ICSI |
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I don't think you should give up on your own eggs just yet. You are still "under 35" and you FSH is NOT high. I know of someone who had a FSH of 24 and was 38 when she got pg. It took her 4 IVF's but it worked for her. She now has three children, 2 IVF babies and the last one she got pg naturally. Good Luck!!!
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Me- 37 (FSH 9.7,) NK Cells, poor responder DH- 40 DS- 2 1/2 years old March 2008- Chemical Pregnancy TTC naturally since June 2008 Jan 2009- Diagnosed with DOR 2 IUI's- Switched RE's to SIRM IVF#1- July 2009 - Estrogen Priming Protocol 7/31- ER -9 eggs ![]() 8/1- 7 mature, 5 Fertilized PGD Testing8/5- Transferred 2 Hatching Blast (Girls!) Grades 1 and 2 (no snow babies )8/14- BETA - ![]() IVF#2- November 2009 11/16- ER 10 eggs, 5 mature and 5 fertilized 11/21- ET |
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Donor cycle because of an FSH of 10? At age 34? WTF? We have patients with FSH over 10 all the time. There's one or two with FSH over 20 every month. Their chances are reduced by the elevated FSH (although, at FSH=10 it's not all that much lower than the ideal), but it was their choice to make. Some clinics protect their success rates by steering the poor prognoses into donor cycles (or turning them away). Such a practice inflates their success rates. The SIRM clinic in Dallas has good success rates, much better than other SIRM clinics. I wonder if this practice of encouraging donor cycles when FSH=10 explains that??? |
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Seriously? Your FSH is just on the high end of normal. I would run from that RE. I would go to an RE who is good with poor responders. From your signature, it looks like your FSH is much less than mine and your antral follicle count is higher. My FSH was 18 when I cycled and my antral follicle count was 7. I will be 29 weeks pregnant tomorrow from a cycle at CCRM.
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DH-33 me-33 (high FSH; highest reading 18) 10/2008-IVF #1 (Houston IVF) long lupron protocol (FSH 10.4) 4 eggs retrieved; 1 immature; no fertilization with ICSI; ET cancelled 12/2008-Clomid Challenge Test-FSH 16 on Day 10 2/2008-Consult with CCRM-FSH 18 03/2008-dealyed IVF cycle due to cyst caused by Clomid 04/2009-IVF # 2 (CCRM) microdose lupron protocol 4/17-ER-7 eggs retrieved; 4 mature; 4 fertilized with ICSI 4/20-ET of 3 embryos; 4 cell grade 4; 8 cell grade 3+; 10 cell grade 3- 5/1-11dp3dt-Beta 292 5/3-13dp3dt-Beta 785 5/20-1st us-HR 125-singleton-measuring right on track 6w5d 6/3-us-measuring right on track at 8w5d (learned that there was a twin that was not initially seen that stopped growing at 6wk) 6/17-us-hb strong, measuring on track at 10 weeks 5days 7/1/09-NT scan normal. It is a girl!! 8/20/09-20 week ultrasound. Normal!! |
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Lisa, Ghost, Houston: Thank you soooo much !
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Me: 34, FSH 10.3, 9.6 AFC 13 DH: Perfect Two wonderful furbabies so far !2007 - 2008 5X IUI, all Feb 2009 Cyst - IVF cycle cancelled May 2009 First IVF 3 eggs retrieved, all fertilized 3dt all three eggs Sept/Oct 2009 Second IVF "Flare" protocol Stim Start Wed. 9/30 Trigger: 10/9/09 Follies: 21, 19, 17, 15, 14 E2: 1200 Lining: 12mm ER: 10/11/09 - 2 eggs retrieved 10/12/09: No fertilization, even with ICSI |
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No, don't give up....Dr. Tortoriello (SIRM) was able to get this lady pregnant with an fhs of 14.5....she actually had retrievel and transfer (of just 1) and got her results same day as me.
good luck
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DH: 30 8 y/o DS Me: 27 Boderline MTHFR and NK cells TTC: 4+ years Married: 6yrs 2 IUI 03/07-: BFN 05/07: IVF #1 09/07: IVF #2 "Antogonist" 02/08: FET #1 IVF #3: New RE: SIRM NYC BCP's: start 11/2 Lupron and Dex 0.75mg: 11/12 Garnirelix: 11/20 Follistim 300 units: 11/27 ER: 12/8-30 eggs/23 mature/18 fertilize ET: 12/13-2 grade 2 blasts-also 6th Wedding Anniversary! 12/13-start lovenox and E2V and PIO 12/19, 12/20, 12/21 + hpt Beta #1: 12/20 89.6, 190 U/S #1: 01/05 TWINS!! HBS baby A 124 baby B 118! U/S #3: 01/26 Baby A 171 Baby B 178 Thank You lord!! I'll be forever greatful! [/color] Baby A:GIRL Baby B:BOY Sarah: 5lbs 17.8 in Noah: 4.5lbs 18.1in July 30TH, 2009 |
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Sharonb- I just got my CRMI packet in the mail. If my second IVF fails, I am considering going there!!
I told you I woud give you a list of supplements- CoQ-10, royal jelly, pygenerol, fish oil, wheatgrass and spirulina. I am also taking chinese herbs from my acupuncturist. HTH!!
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Me- 37 (FSH 9.7,) NK Cells, poor responder DH- 40 DS- 2 1/2 years old March 2008- Chemical Pregnancy TTC naturally since June 2008 Jan 2009- Diagnosed with DOR 2 IUI's- Switched RE's to SIRM IVF#1- July 2009 - Estrogen Priming Protocol 7/31- ER -9 eggs ![]() 8/1- 7 mature, 5 Fertilized PGD Testing8/5- Transferred 2 Hatching Blast (Girls!) Grades 1 and 2 (no snow babies )8/14- BETA - ![]() IVF#2- November 2009 11/16- ER 10 eggs, 5 mature and 5 fertilized 11/21- ET |
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Lisa. Thank you! I also got a packet from CRMI! I haven't opened it yet though...I wouldn't be able to go there until April though when my insurance would change over. Thanks for letting me know about the supplements you're taking. As for the herbs, did your acu make you a custom formula or is it pill? I'm also taking CoQ10, Vit D, and just started rj with bee pollen (was taking in a vitamin, but am switching to fresh in honey), grape seed extract, omega 3-6-9 and a green food supplement...oh my, so much and I don't know if any will help or make a difference. So many pills!
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Me: 34 - borderline fsh (highest 9.2), egg quality DH: 33 (no problems) IVF#1(gonal F, lupron) 6/08: 2 3days embryos transferred, both 8 cell-none frozen IVF #2 (gonal F, lupron, repronex) 8/08: 2 3 day embryos transferred, both 7 cell-none frozen IVF #3-new RE/Clinic (gonal F, cetrotide, estrace, baby aspirin, AH) 3/09: 3-Day ET: 2- 7 cell and 2-4 cell (none frozen) IVF #4-new RE/Clinic 9/7: Start stims (menopur, lupron, follistim, dex, medrol) 9/14: HCG Trigger ER 9/16: 11 eggs retrieved, AH, 6 Fertilized ET 9/19: All 6 still growing!! 3 day transfer of 3 embies (8, 7 and 4cell, no/min. frag) and finally embies (3) to freeze for 1st time beta 10/1 (12dp3dt): ![]() 562nd beta: 10/3: 107 3rd beta: 10/5: 305, prog 4th beta: 10/7 : 630 5th beta: 10/9: drop to 597... ![]() 6th beta: 10/14: 59...stop all meds...its over |
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I am so sick of taking so many pills. I try and break it up throughout the day. My herbs are in powder form and you drink it like tea. Every week I get a different mix she makes for me....some really hard to drink but I do what I have to do!!
I really wish you LOTS of luck!!! I think if you go to any of the three, you have a great shot! Since I am already at SIRM, my first choice would be CCRM and second CRMI. Cornell is just closer and would be easier.
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Me- 37 (FSH 9.7,) NK Cells, poor responder DH- 40 DS- 2 1/2 years old March 2008- Chemical Pregnancy TTC naturally since June 2008 Jan 2009- Diagnosed with DOR 2 IUI's- Switched RE's to SIRM IVF#1- July 2009 - Estrogen Priming Protocol 7/31- ER -9 eggs ![]() 8/1- 7 mature, 5 Fertilized PGD Testing8/5- Transferred 2 Hatching Blast (Girls!) Grades 1 and 2 (no snow babies )8/14- BETA - ![]() IVF#2- November 2009 11/16- ER 10 eggs, 5 mature and 5 fertilized 11/21- ET |
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Hello all,
I hope you don't mind the intrusion but since this thread was about SIRM I wanted to share my experience and a warning. I'm sorry but it is long. I ask you to please share this story with anyone you know who is considering SIRM or Dr Sher. I don't want anyone else to experience what I went through. I'm 38. I'm a cancer survivor. I've been trying to get pregnant for a year but have been plagued with chronic cysts which delayed IUIs and have had surgery to remove one such cyst and 6 failed IUI attempts. My FSH is rapidly rising. My response to follistim rapidly falling. My doctor wouldn't even consider IVF because I'm a "poor responder". So, let me preface that going into IVF I knew my odds weren't great but being robbed of the ability to say "at least I saw the best of the best and did everything I could" is far worse than a BFN. Part 1 - Finding the "IVF Authority" I found Dr Sher and SIRM through the many many articles all over the internet, including Dr Sher's own personal Blog which I had read in the past, and the SIRM forum which I had consulted several times for information. I have gleaned a lot of detailed clinical information from the various SIRM enterprises over the years that I had used in the past to better understand my own medical circumstances. When I learned I could schedule a free consult I was thrilled. I was in a place where I felt like my current doctor wasn't doing all that could be done, and worse, I felt some of my care was inappropriate given my history. I wasn't necessarily looking for a new doctor, just a second opinion and maybe someone to either tell me I was crazy or show me some clinical evidence to support my gut instincts. Part 2 - The Free Phone Consultation Dr Sher called me for the free consult and I was very impressed that he had requested my medical history ahead of time and gave the impression that he had reviewed it thoroughly when we spoke. He went over my history, and asked questions, and then discussed various treatments and why they don't work, including the treatment that I'd had so far. The conversation made me feel somewhat vindicated because I'd had the concerns he was raising but here was an "expert" telling me what I'd already suspected. I asked if there was hope and he said that he wanted me to talk to his nurse, get some tests as soon as possible and then schedule a second consult with him after I'd had the tests done. I hadn't even thought about what it would mean to see him for treatment at this point but I felt hope for the first time in a long time. At the end of the consultation Dr Sher said he "really felt sorry for what I'd been through" and that "after hearing my story he needed a beer" and that he was angry and upset for me. I really felt like he cared. Part 3 - The Second Consultation The second call was a bit shorter (the first one was over 2 hours) and Dr Sher went through my test results and said "everything looks good". I asked what that meant and he said to talk to his nurse. That he recommended I sit out a cycle but that he could get me into his October/November cycle. I felt like I'd won the lottery. Here was a "big wig" doctor saying he could help me and was willing to take me as a patient. I knew my chances weren't great but at least this was a fighting chance. I told him that would be great, but before I could ask him some other questions about the process, timing, and all the logistical stuff I'd need to know in order to even determine if I could handle treatments out of state, he had transferred me to the nurse. I was still floating on clouds so I didn't stop to question this behaviour. Part 4 - Being Treated as an Out of State patient The first nurse I spoke to was really nice and helpful and answered all my questions so I felt immediately at ease. She said they have out of state patients all the time and the system is straight forward. I didn't even need another RE to work with locally as the doctor did everything himself. A friend stepped up and said she was willing to come housesit for me if I decided to go for it. Another friend offered me a place to stay. Everything fell into place so fast that I thought it was fate or finally a change in my luck. Part 5 - Committed to the Process After I was "on the list" things changed. They assigned me to my cycle nurse, who wasn't nearly as nice as the first nurse. In fact, she was abrasive, defensive, and short. She was efficient though and got me my list of medications and orders within minutes. Trying to call her with questions was virtually impossible. If I called I'd get shuttled to her voicemail. Through the process I found that emailing was the fastest way to get a response and as long as I didn't ask anything too in depth or question any of the orders, she would be "nice". I felt intimidated, but this too I dismissed because I thought "this is just how it works with out of towners", and "it's a well oiled machine and she has to be harsh", and "it'll be different when I get to the clinic for my cycle and I'm working directly with the doctor". I got all my tests in as fast as possible. Sent them all my medical records. Took all my medicines exactly when I was supposed to and did everything I could to be a model patient. I figured if I did things 110% then I'd help myself succeed. Part 6 - My First Appointment in Las Vegas When I arrived for my first appointment, the scary nurse actually smiled and was nice. The office staff were friendly and genuine. The office was clean and professional and a little bit posh (lots of money). It reminded me of one of those Beverly Hills plastic surgery clinics where the stepford wives go to get their nips tucked and their lips collagenated. In fact, a lot of the patients looked rather plastic themselves. I felt out of place. The appointment was supposed to involve a blood test, an ultrasound, a meeting with the doctor and nurse, and my Intralipid infusion. They had scheduled it as three separate appointments throughout the day so I basically had to come there, leave, then come back again twice. I took the day off work (I was working remotely) in order to make all the appointments. The first part of the day was the blood draw. I'm a bad stick on even a good day but usually it takes no more than 2-3 tries and I had made sure I was super hydrated that morning. Well, literally every nurse in the place tried to stick me using teeny tiny needles. I sat and wondered how it was possible for a clinic who saw so many patients to have such a hard time getting blood drawn. I'm a paramedic so I watched their technique. It was as if they'd learned to draw blood from an instructional video. After 6 sticks, they finally were able to get enough blood for my test. The second part of the day was the ultrasound and meeting with the doctor. I had been anticipating this since I became a patient. This was the moment of truth. When I'd actually meet the doctor who had given me hope. I didn't really have any questions specifically but I was anxious to see how my ovaries were responding and eager to discuss the protocol and what lay ahead. I got undressed from the waist down and sat on the ultrasound table waiting with my flimsy paper blanket. In waltzed Dr Sher, he smiled, shook my hand and said "so let's see if you're making me any follicles". That was it. He did the scan, counted, and when there were just 6 small ones and one or two bigger ones said "Oh, she's our poor responder", then patted my knee said he'd see me in 3 days, then left. He was in and out of the room so fast I had to stop to think if I'd actually seen someone or was just imagining it. He didn't even acknowledge our phone conversation or make any indication that he remembered who I was. My head was spinning. What did he mean he'd see me in three days?!?!? My u/s clearly showed 8 follicles but one was very much a lead follicle over 12mm and the rest were smaller. My first thought was "don't you want to suppress? do something to keep that lead follicle from taking over?" But I didn't get to ask any questions because he was already gone. I thought, "well, surely there is a sit down meeting with him and the nurse afterwards", but no. They whisked me out to the nurse's station where I had my "nurse meeting" which consisted of the mean nurse handing me a revised calendar and asking if I had any questions about the medicines. I asked why I wasn't being seen for 3 days and she said "Oh, that's normal time between the first and second u/s" and gave me this look like she was daring me to ask another question. I felt intimidated but asked "aren't I going to meet with Dr Sher", and she said "you just did". Then she was set to send me home and I said "I thought I was supposed to have my transfusion today". She had forgotten. Not only that, there wasn't anyone who wanted to attempt to start an IV on me. She tried three times then finally was going to send me home when another nurse (the nice nurse) suggested calling the anaesthesiologist to come in and do the IV. I waited for an hour in the "room" they had put me in which was more like a closet. I finally got my IV and then they left me in the room unattended while I got my infusion. Everything I'd read about intralipid suggested that the first infusion was the most risky as the patient might have an allergic reaction, so I was a bit nervous about being alone. I kept my phone close just in case. After the infusion I got sent home. I asked when my appointment was and they said they'd call me the day before with a time. I mentioned that I was working remotely and needed time enough to let my boss know and got this look like I'd just asked for the moon. I was so shocked and intimidated at that point that I just went home and kept telling myself "he's the expert, he knows what he's doing" so I wouldn't stress out. Despite the obvious evidence before me I kept trying to reassure myself everything was fine. Part 7 - Subsequent Appointments My subsequent appointments went pretty much the same way. Multiple sticks, a perfunctory ultrasound in which Dr Sher would say something generic and not call me by name then make some off-handed comment about me being a poor responder and whisk out of the room like a ghost. The surly nurse would hand me a revised medicine schedule, ask if I had questions with that look that dared me to say anything, and then send me on my way saying "they'd call" to schedule my next appointment. Afterwards I'd do my best to stay positive and reassure myself that this was a well-oiled machine and all patients were being handled similarly. Then one day I noticed Dr Sher in the hall, talking to a patient and her husband...both dripping in money (you know, big rings, designer label clothes, big expensive handbag for her, Rolex for him)... He was giving them details about their treatment. Smiling. Patting her hand. Calling them by their names. Reassuring them. It wasn't everyone, it was just me...or maybe just patients like me. Who knows. All I know is this couple were being treated like family while I was being glared at by the mean nurse. Part 8 - Egg Retrieval Day The ER involved ZERO contact with the doctor beforehand which I found unsettling but not surprising by this point. I was nervous. The took me to a curtained off room and had me put on a gown. The anaesthesiologist came in to do my IV because of my "history" as a bad stick. She tried once and failed, then someone came in and asked for her and she just left. And I sat there for a half hour as the woman in the curtain next door moaned in pain and a drugged stupor after her egg retrieval. I kept taking deep breaths and telling myself they do this everyday. The anaesthesiologist came back and tried 2 more sticks then said they'd "move me to the retrieval room where there was better light". They lay me in the cold scary room and had me put my legs in the stirrups, then she tried 3 more times to get a line. It took her six times, including one attempt in my THUMB!!! Yes. My thumb. I'm a paramedic. I stick people in all sorts of places when I am desperate to get a line on someone "difficult", but never would I put a needle into someone's thumb! Thankfully, once they did have a line I got lots of happy forgetting medicine and they did the retrieval. I remember the doctor coming in and putting in an icy speculum just as I was nodding off. He didn't even say hello. So, they got three eggs from the ER... You know how I found out? The doctor saddled past my recovery cube, poked his head in the curtain and put up three fingers. He didn't come talk to me afterwards either. Just a smile and three fingers was all I was worth. I waited in recovery for 4 hours because I had to wait for my friend to get off work and come get me. No one came to check on me that entire time. Part 9 - Embryos The next day, a different nurse (I call her the nice nurse) called and told me all three had fertilized and wanted to schedule a day 3 transfer. I asked why they were scheduling ET when they didn't know how the embryos were doing yet. They said "well, with only three we do a day 3 transfer because we're putting them all back in anyway". Day 3 came and the ET wasn't much better than the ER experience. I showed up at my appointed time and they whisked me into the room, had me undress, then the anasthesiologist came in to do my acupuncture (which I had to pay $250 for out of pocket). I had to insist that they give me a report on my embryos because up until that point I'd heard nothing since the fertilization report the day before. After a while the nurse came in and said they were "4, 4, and 6". I asked what that meant and she hedged and got vague and said "We like to see them at 6 but they are growing and the best place for them is in your uterus". I assumed that meant we were going ahead. I tried to calm myself and they did the acupuncture and i lay there visualizing and waiting. In whisked the doctor and said a generic hello as I lay there half naked with legs in stirrups. He looked over my chart and said "So are we doing the transfer today?"... I can't remember what I said...something like "I assume so". Then he said, "Well don't you want to wait and see how they grow?" I WAS FLOORED!!!!!! I said "I don't know. You tell me what is best."... then he mumbled something about why spend $1000 on a transfer if they're not growing then looked at me, seemed to notice I was laying there half naked and said "Oh, well, you've already had your acupuncture so we might as well get on with it". The embryologist the came in and confirms my name and said how many embryos etc and I say yes. That was the first time any doctor had actually said my name. The anaesthesiologist asked if I wanted her to stay which I thought was nice. So she stayed and held my hand. They had given me an ativan but it really hadn't taken effect so I was really scared. The doctor didn't really warn me, didn't say anything at all actually. He just got to work. Speculum in, then some sort of cleaning procedure which was rather unpleasant and then the nurse held the ultrasound probe and he started the procedure. He didn't tell me what he was doing and the nurse stood right in front of the monitor so I couldn't see anything either. The whole time I'm whimpering and he's calling me "Linda". "There there, Linda"... "Now you're really mad at me for hurting you Linda"... etc. They finished the transfer and helped scoot me up on the table so I could lay flat, I breathed a sigh of relief then just as the doctor was getting ready to whisk away like a ghost, the embryologist came in again saying one embryo got left behind in the catheter. The only thing the dr said was "Was it the 6 cell?"...that made me feel like maybe that one was the only one worth keeping and he was just not telling me. I swear it was as if I was a slab of meat. They slid me back down, prepped me and did the whole thing over again without so much as a by your leave. The second time was worse. He kept pushing at my cervix but the catheter wasn't going in, then he told the nurse I had a "false passage" and tried again. After a few minutes he got it, then they did the whole lowering my legs and propping me up on the bed thing again, the doctor made a comment to the nurse about "this room is bad luck, this is the second stuck embryo we've had" then patted my should and said something like "It's in God's hands now", which just made me want to punch him in the teeth. After that I got my med list from the nurse, an order for the beta in ten days, and everyone left. I was told to lie there. Meanwhile, I really had to pee and everyone left me there in the dark. I knew that moving would be bad this early but I had to go. Just as I was contemplating just going on the bed a nurse walked in and I begged to go bathroom. She brought in a bedpan and then left. After another 20 minutes I was told I could go home. No one said anything to me as I left the office. It was as though I ceased to exist from that point on. Part 10 - Bleeding and Beta Day I started having spotting several days ago and immediately called the nurse. I was told "this is normal" and it's "not a period" and that while on the progesterone shots it's "impossible to get a period". Well the bleeding got heavier and heavier until today where it is pretty much the most periody non-period I've ever had. I have been bleeding heavily for two days now and today's blood pregnancy test was just a formality as far as I'm concerned. I figured, I'd go get the blood test then they could call me and tell me what I already know and I could grieve and move on. Instead, it typified my frustrating and gut wrenching experience that this whole process has been. When I went in to the lab this morning and gave them my order for the blood test, they said they needed a diagnosis code in order to do the lab. The nurse had just given me a xerox of their order and hadn't bothered to fill in the boxes. The clinic wasn't opened for at least 3 more hours because they're on pacific time. The lab tech was nice enough to take my blood anyway and said she'd hold onto it and if she got the diagnosis code she'd send it out otherwise she'd throw it away. That way, I would only have to come back if she didn't get the code before the pickup time for that day. I decided to play it safe and called the on-call nurse and told her what the lab needed and asked her to please call them with the code. She said she would and that was that. So I waited. And waited. And waited. I figured with the time difference I'd have the results by 5pm or so, 6pm at the latest. Nothing. So I decided to call. I was told the nurse wasn't at her desk and asked to leave a message (common occurrence and one of many frustrations) so I said it was important that I was having heavy bleeding and I needed to know my results. I never heard back. Later this evening, just before I was about to call them back, I checked my email and there was a generic message from the nurse saying that they "don't give out pregnancy results until the second beta". No phone call. Just a generic email message!!! At that point I decided to call the on call nurse again. It was the same lady I had talked to that morning (the "nice nurse"). I explained that I wasn't asking for a diagnosis of pregnancy, just my beta results. And given all the trouble we had that morning, I would think she'd understand me wanting to be sure they came through. I also said I was SHOCKED to get an email (which I only found by chance) and no phone call after expressing my concern about the heavy bleeding. She seemed incredulous... not about the lack of call. About my bleeding. She said "we never see anyone get their period while on progesterone" and asked if I was "sure I was taking all my medicines" like I'm some sort of idiot!!! I said I was and that I even took a second suppository hoping it would increase my progesterone and stop the bleeding. She then made me promise to keep taking my medicines if she gave me the beta result and I said I wasn't an idiot and wouldn't stop medicines until the doctor told me to. I then got the result. Beta = 1. At that low a level, it might as well be a zero. I still am taking my medicines and I still have to go back for my second Beta on Wednesday before they'll tell me it's officially a BFN. Anyway, that's my experience with SIRM and Dr Sher. I plan to write him a letter expressing my concern over my treatment (or lack thereof) but I feel it is important for me to share this experience so that no one else has to go through what I did. Knowing that the IVF didn't work doesn't hurt nearly as much as the betrayal I feel at being suckered by this supposed expert. He made me think he actually cared during the initial consult in which he acted like HE was going to cry on my behalf after hearing my story. Then once I was a patient he couldn't even be bothered to remember my name. I knew the odds going into this and never had any illusion that it would be a long shot. I had hoped that if the worst case scenario played out, I could at least rest easy knowing I'd sought out the "best of the best" and given myself the best chance of success. Now I just feel like a world class sucker who fell for a scam by a clever snake oil salesman that preyed on my weakness. Please share this story and please think twice before you consider SIRM or Dr Sher. Thanks for reading!
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SilverBrumby: Single mum to be Age: 38, Cancer survivor DH: None, Knocking myself up. Apr08:First RE visit. Lots of tests. May08:4cm cyst L ovary from Clomid Challenge. Jun08:new RE! old RE sucktacular Aug08:IUI#1 (natural) 29/08 Sep08:IUI#2 cancelled -late surge Oct08:IUI#2 (150iu folstm,hcg)18,18,12,11 Nov08-Feb09: benced for cyst. Saw onco to r.o. cx reoccurance Mar09:21mm cyst. IUI#3 (150iu-200iu Folstm,hcg)18,16.5,14.5,12 ![]() Apr09:TWO @#!$% cysts ![]() May09:R cyst gone. L cyst 7cm! Surgery recommended. 15May09: lap.cystectomy, lots of adhesions, dr thinks they caused cyst. 4Jul:IUI#4 (250-300iu Folstm,hcg)R:17.5,14,9 29Jul:IUI#5(300 Folstm,hcg)R:18,12.5,9 24Aug:IUI#6(300Folstm 2xday,hcg)R:18,10 **IVF with SIRM - NEVER GO THERE!!! THEY ARE AWFUL!!!!** 9/6:CD3 bw-FSH 10.5, E2 38 10/2:CYCLE START 11/2: ER - 3 eggs, 100% fertilization 11/5: ET 3 embies 4,4,6cell 11/7: trip home 11/18: |
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I take it that your name is not Linda?
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Silverbumpy, am really so sorry you have had such a nasty exerience with SIRM.
Am going through the same thing right now! I am also cycling with SIRM, LV and although I havent gone to LV yet (using donor eggs), communication with my DC is to say the least exasperating! You practically have to force information out of her. One thing I do though when she is been vague with information is I let her know how i feel and then she immediately apologises. I am actually now dreading my transfer after hearing your experience! My husband had very postive things to say about the nurses when he was in LV to give his contribution. I have tried to focus on my goal and SIRM will help me get there. If I have to cope with rude nurses and an uncaring doctor to get there, I will take it as yet another price to pay to hold my baby(ies) in my arms.Having said that, it will be great to have caring professionals on this roller coaster of a journey. Espcially considering how much we pay them. they can at least be polite! |
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