[frymomma2b]

Ok so i realllly hope i get a call i just e-mailed maryanne and called the number. Oh then i called and emailed the other study for the progesterone. As soon as i seen this i was elated with hope. We have been having a horrible time the last couple of weeks and i called dh as soon as i seen this and he said ummm duh go for it. so i am hoping we get a call. Hubby was really hopefull too. I Love you guys it is so great that you are helping give the info.

Mel- that is so cool that you will be down here ( i am in the Houston area) and I really am praying for you that everything goes great. I feel like this is Gods gift of hope for us all.

[Passionscientist]

Hi Lorry!

I'm so glad you found the trial!! Definitely call the trail study hotline number and leave a message (MaryAnne will probably email you back and tell you to do the same thing). Good luck and let us know when they schedule you up! Looks like there is a good group of us forming! I'm going to try and make a list later tonight so we can keep in touch!

Kristen

[frymomma2b]

Actually i already recieved an e-mail response in this short amount of time from the second one. A lady named Christine asked for my location in order to have someone contact me for possible participation. I was so excited i told her Houston and forgot to put Texas. lol. So i had to send a follow up

[Passionscientist]

Originally Posted by frymomma2b

Actually i already recieved an e-mail response in this short amount of time from the second one. A lady named Christine asked for my location in order to have someone contact me for possible participation. I was so excited i told her Houston and forgot to put Texas. lol. So i had to send a follow up

That's great! Good luck and let us know what happens! Where in Houston do you live? I live down in League City

[Melanee2255]

YAY!!
I am so excited that so many people are thinking about doing this! I am kinda worried though because I didn't even think to ask which location my appointment was at?

Kristen, if they didn't specify which one...would it just be the one in Houston on Kirby Drive? I will email them and just double check. I hope I haven't been planning my whole trip around the wrong facility I haven't booked anything yet though so its okay if I did I will just have to do some rearranging.

Okay I am going to do my best at answering the questions that were asked. I have not done IVF before, just done 3 failed IUI's. I don't have any known history of Endometrioses or Polycystic. I am from Utah and I will be traveling down for each visit and only staying down there for the appointments. When I spoke to MaryAnne she said that they would try to work with me to get all they can get done in each trip so that I can be traveling down there as little as possible. I will be just staying in a hotel around the corner from the facility. I emailed them last wednesday night and got 2 phonecalls the next morning, they did my pre qualification on the phone on Thursday and said they would call me back if they wanted me to come down. I got the call yesterday morning (Tuesday) to schedule my initial screening. So I did have to wait a little while for them to call me back.

I spoke with Maryanne yesterday and was asking her about this progesterone ring, and she said its basically the same as the progesterone suppositories but it just works a different way. My sister is a registered nurse here in Utah and she asked around the hospital and from what people said it seems safe! That is the only thing that they will be testing at least on my test (I think they are done accepting people for the one that kristen is doing, with the long lasting stim drug). So I bet it would be pretty safe to say that if the rest of us haven't started the process yet we will be doing the progesterone ring.

Like Kristen (passionscientist) said..they are SO busy right now trying to get everything in order so don't get discouraged if it takes a while to hear back from them.

Lorry~YAY I am so excited to hear that you are down in that area! I think if a bunch of us are down there at the same time we should meet up and go to dinner of something down there!

Let me know if anyone has any more questions!

Mel

[Passionscientist]

Originally Posted by Melanee2255

YAY!!
Kristen, if they didn't specify which one...would it just be the one in Houston on Kirby Drive? I will email them and just double check. I hope I haven't been planning my whole trip around the wrong facility I haven't booked anything yet though so its okay if I did I will just have to do some rearranging.

Mel

Hey Mel -

Most likely you will be going to the one in Webster as that is their main office. But definitely double check with Maryanne! If you need a good hotel recommendation, let me know Most of the hotels on Bay Area Blvd are nice and closeby (not walking distance though).

Kristen

[Passionscientist]

Passionscientist - Kristen (TX) - Lupron 2/29, Stims 3/14
Babybearjmd - Janice (TX) - Waiting on
Melanee2255 - Mel (UT) - Appt on Tuesday
mleonard0128 - (AL) - Appt soon!
pray2bmom - Nicole (LA) - Appt on Monday

I think there are more of you Let me know if I'm missing you!

Kristen

[babybearjmd]

Hi girls!!! There are quite a few of us here. We can compare our experiences with the trial and clinic. Thank you Kristen!!! .

I had my appt first this past Monday. I will be in the progesterone trial. I was supposed to come in for day 3 lab work, but AF didn't cooperate. I went down there anyways and asked them to do as much as they possibly could so the trip would not be wasted. My appt was at 10 AM. They asked me to come in earlier and I told them that I wouldn't be able to because of the distance traveled. I instead asked them to fax me any and all paper work that needed to be read and filled out. I brought all of the paper work with me and it saved a little time. I also brought a copy of my RE records, DHs urologist records, and my last pap results from my PCP.

There were quite a few people in the waiting room, but everyone was friendly. They did a trans-vaginal U/S, std cultures, and lab work for HIV, hep b and c. During the u/s they counted my antral follicles and measured my ovaries and checked out the uterus. They also went over the study consent forms with me and had me sign and initial a jillion pages. DH came with me and they drew blood from him to test for HIV, hep b and c. THe study protocol dictates all of the testing. If your DHs can get tested by their own pcp, then that's ok too. The clinic will verify your DHs insurance before the test to see whether or not you have to pay out of pocket.

The paper work is a little overwhelming at first and expect to pay a little money (@$1100) over the course of myour cycle. The study doesn't pay for embryo cryopreservation or storage and there are some administrative fees that they said had to be paid for out of pocket (not on the first visit though). I made sure to remind them that I was coming from out of town and Maryanne assured my that they would try to combine as many of my visits as possible.

They will be using a lupron protocol with bcps. Once AF comes, I will go back to Houston for day 3 labs and I will get my bcps. I will start taking them once the lab results are back and FSH shows normal. I will then have to go in on a Thursday (10-21 days after bcps) to get shot instructions and the lupron. I will take the lupron for 2 weeks beginning Friday after the Thursday appt. After taking the lupron for 2 weeks, I will go back to the clinic and begin the stims (gonal F). Once I begin stims, I will pretty much stay in Houston until at least 3 days after ET. That's very roughly 3 weeks. They want you on bed rest for 48 hours after ET so don't plann on traveling back until then. Once you get the study protocol, look over all of the visits. There are a lot. After ET, you have to go back to the clinic at least once a week for the next 3 weeks. If you are pregnant, there will be more visits.

All in all, it is definitely worth it! The clinic is very nice and there are plenty of hotels and restaurants around the clinic. They do most of there stuff in the Webster office. If for some reason, you want to go to the Houston office for certian things (NOT the first appt though), just let them know. Continental Airlines has some pretty good special to Houston fairly often. Most of these arrive on Sat and depart on Mon or Tues. Oh by the way, they will also work with you (if it falls into you IVF schedule)and see you on weekends if it is more convenient.

Just as an FYI, this trial is also going on in Dallas at The Center for Assisted Reproduction in Texas - Fertility Treatment They do not advertise on there website though. Maryanne had mentioned it to me that there are 3 locations in Texas: Houston, Dallas (Bedford), and Austin.

All of the different sites are listed in the link to the study. Kristen posted it earlier, but herre it is again: A Clinical Trial to Evaluate the Efficacy and Safety of DR-2011 for In Vitro Fertilization - Full Text View - ClinicalTrials.gov
It doesn't list the clinic name so you would have to do some hunting. You could probably call the main study coordinator on the clinicaltrials.gov site and ask. Maybe one of those locations would be more convenient.

Anyways, I hope this gives you a better idea of what will go on. Good luck to everyone!!!

[marcia9043]

I am also doing the study but in the DFW area, for those of you that are far away from TX you should check out the list of clinics doing the study there may be one closer to you! Just a thought

[Nursamp]

I am also participating in the study but I am in Greenville S.C. cycling in Charleston S.C., I believe it is 25 clinics participating. Good luck to everyone

[Passionscientist]

Great information Janice!!! I didn't realize they were doing it so many locations in Texas and across the country! That's awesome! I hope more people can take advantage of it!! Spread the word! LOL!

PS - Since you mentioned the flight information, there are also flights on Southwest into Houston Hobby that are easier/cheaper than flying Continental. Hobby is much closer to CORM than IAH. Just an FYI.

[Passionscientist]

Here are the locations doing this trial from the website. To find out more information

Please refer to this study by its ClinicalTrials.gov identifier: NCT00615251

Contacts

Contact: Christine M O'Leary, Pharm.D.

610-747-2679 coleary@barrlabs.com Contact: Duawn Campellone

610-747-2679 dcampellone@barrlabs.com

Locations
United States, California
Tarzana, California, United States, 91356

West Los Angeles, California, United States, 90064

West Lake, California, United States, 91361

United States, Florida

Clearwater, Florida, United States, 33759

United States, Georgia

Alpharetta, Georgia, United States, 30005

Atlanta, Georgia, United States, 30342

United States, Idaho

Boise, Idaho, United States, 83702

United States, Illinois

Highland Park, Illinois, United States, 60035

Chicago, Illinois, United States, 60610

United States, Maryland

Rockville, Maryland, United States, 20850

United States, Michigan

Rochester Hills, Michigan, United States, 48307

Dearborn, Michigan, United States, 48126

Flint, Michigan, United States, 48503

Saginaw, Michigan, United States, 48604

Ypsilanti, Michigan, United States, 48197

United States, Minnesota

Woodbury, Minnesota, United States, 55125

United States, Nevada

Reno, Nevada, United States, 89511

United States, New Jersey

Morristown, New Jersey, United States, 07960

Marlton, New Jersey, United States, 08053

United States, Ohio.
Cincinnati, Ohio, United States, 45209

Sylvania, Ohio, United States, 43560

United States, South Carolina
Mount Pleasant, South Carolina, United States, 29464

Columbia, South Carolina, United States, 29201

Myrtle Beach, South Carolina, United States, 29577

United States, Texas

Beaumont, Texas, United States, 77706

Austin, Texas, United States, 78731

Webster, Texas, United States, 77598

Bedford, Texas, United States, 76022

[frymomma2b]

Hey passionscientist- I lived in League City for a little while until about 13mths ago when we moved to Mont Belvieu which is pretty much in Baytown.

I thought that they payed for everything. I mean i am not complaining i just thought incorrectly i guess. I got cc'ed on an e-mail from Christine to Maryanne so I am waiting on the call.

mel- I would love to do dinner with all of us one night. We should figure out when our scheduals meet up.

[Passionscientist]

Originally Posted by frymomma2b

Hey passionscientist- I lived in League City for a little while until about 13mths ago when we moved to Mont Belvieu which is pretty much in Baytown.

I thought that they payed for everything. I mean i am not complaining i just thought incorrectly i guess. I got cc'ed on an e-mail from Christine to Maryanne so I am waiting on the call.

mel- I would love to do dinner with all of us one night. We should figure out when our scheduals meet up.

Hey frymomma -

Your close by! Very cool!

Probably my mistake for saying it was paid for in full because the trial I am in (which is now full) is paying for everything except for some antibiotics and cryproservation of any remaining embryo's. This new trial sounds like they are paying for a lot of the fees, but not all. I think the cryopreservation and storage fees are the bulk of that fee though plus some of the medications so depending on what insurance you have it may cover some of the medication costs. I need to talk to Janice, but I have only had to pay for some of my medications so far on my trial and it's only cost me $18...if I didn't have insurance paying those it would have been around $90.

You will get more information when you talk to Maryanne...GOOD LUCK!

[mia23]

Kristen,

Thanks for posting the locations and contact info. I sent emails to both and called the number. I have not heard anything yet from Houston but it would be so great if
I could participate in one here in Ohio or Michigan. Is this all the same study? Well I hope to hear something from someone soon!!!! Good luck everyone I hope this brings a lot of BFP's .