[Julie]

Don't feel alone, we will all pray for you and for your precious little boy.

[AviatrixRN]

Just wanted you to know you are in my thoughts and prayers too.

[nursesunshine]

I'm so sorry you are dealing with this stress. It sounds like you are getting great care and recommendations. I am in Canada too and I know that it is not always the case here but I hope you continue to be a top priority and they do everything they can to help you and your little boy. I wish you peace as you are struggling with this.

[bunniswife]

Thank you all for your prayers and support. I can't stop crying. I'm just so scared of what's going to happen and the stress this is having on my marriage is unbelievable. DH and I are arguing about stupid irrelevant things, just about the last thing I want when we're dealing with so much....He won't talk to me about how he's feeling but he's yelling alot at our daughter and it's breaking my heart....I don't know if we're going to make it through this....How can God be so cruel???

[hopeful1230]

Originally Posted by bunniswife

Well Shane and I had our follow up cardiac echo for our twins today and it looks like we're back to the original diagnoses. Our baby boy appears to be missing his pulmonary artery as well as having numerous other defects of his heart. I'm devastated. I can't stop crying, all the hope we had in the last four weeks has been dashed to the ground and everything is uncertain again. His defect is so complex the pediatric cardiologist we saw today has brought up flying him to San Fransisco after his birth. Apparently one of the best pediatric cardiologists in the world works there (we live in Canada). I feel so hopeless right now, I can't even begin to explain how much this hurts my soul....knowing there is a good possibility our little boy won't live. It doesn't seem fair after all we've already gone through trying to have babies and all the ones we've lost already. I feel so alone. Please, please pray for us...

I'm so sorry that you are going threw this pain. I will pray for your little boy and your family.....

[nursesunshine]

I'm sorry this is putting such a strain on both of you and obviously affecting your daughter as well. Would you both be willing to talk to a professional about it. That is a lot of stress to deal with and perhaps that would help you both find better ways of coping? I hope you find a way through this.

[Eriksgirl19]

I hope you & your DH find a way to really come together & support one another through this incredibly difficult time. I know we don't know how or when, but there will be a light at the end of this dark tunnel and God will provide for your family. We are all here for you...anytime!

[shb24]

I just want you to know that I am thinking of you and your family. Please seek help from a professional - I did years ago when I was going through a divorce and it was THE BEST thing I ever did. I think everyone could benefit from counseling, and I truly mean that. There isn't a person out there who has a perfect life - there is no such thing. I hope you and your DH will each go separately and also together. I'm sure he is feeling pain himself, doesn't know how to deal with his own pain let alone yours, and it is coming out as he is dealing with your daughter. Please seek help - there are wonderful professionals out there. I'm so sorry for your pain.

Shelly

[rebecca0130]

Bunni - you are going to go through all the stages of grief, and anger is a big one. Try to accept that this is normal and remember that you have a loving husband and wonderful little girl already in your life.
It is not easy to go through any of this, but listen to your gut and your doctors - this is what medicine is for.
My first son was born with a congenital heart defect, pulmonary stenosis. It was not detected in utero and became life threatening at 6 weeks old, he had open heart surgery to expand and "fix" the valve at 3 months old. I will not lie it was the most excruiatingly painful thing that DH and I have ever gone through - at times I never thought I would get up off the floor and live - truly, no exaggeration. I know you have felt that already.
Two years after his surgery, I can look back and see a purpose. Also, he is healthy, happy and fully normal. He will need a new valve when he is about 18, but otherwise the doctors' performed a miracle.

I am praying earnestly for all of you.

[MissusJones]

I don't know if you watch those baby programs on TLC and The Health Channel, but I've seen numerous cases of families that were told their child was going to have a life threatening illness or disease, yet when the babies are born the original diagnosis is so much worse than the born baby has to deal with and many of them born completely healthy. Remember a lot of times these tests are geared to give you the worst case scenario and prepare you for the worst. Have faith, hope and still continue to pray for the best!! God Bless you truly!!

[sun_101]

Bunni - You have gotten some really good information on here already. I just wanted to let you know that I did a rotation at Duke University in North Carolina, and I first hand got to see some of these miracles. Tetrology of Fallot is a complex surgery, but as they've told you they have come a long way. There is no lost hope at this point. I know Duke will help families from other countries with surgeries, it's something to look into if it's an option to you. I will keep your family in my prayers, I know it's a difficult time right now.

[futuremom2b]

It's so hard to believe right now, but God is with you and is the only one who understands what and why you are going through this. I know that's hard to hear, but I have to tell you. You and your family will be in so many prayers and your posts are helping us understand what you need so don't stop venting, crying, being angry anything you have to do or feel.

I wish I could make this pain go away for you, I only went through one MC and the pain was so terrible. It still hurts so bad, and you have been through so much.
My family will be praying for your, try and just hug DH, men deal with pain differently.